This is gonna be a tough one to write about – but hopefully it will be cathartic. Although I’ve shared the details with my family and close friends, it’s still hard to relive it again. Red wine is poured — here we go…
Going into my elbow revision surgery on January 9th I wasn’t too phased or worried, I just wanted it over and done with so I could be back home, recuperate, and get back to life and painting again. Afterall, this would be my 10th surgery related to my arthritis/autoimmune issues– I could practically sail through it in my sleep – or so I thought.
Prior to the 9th my doctor was concerned about an infection being the reason for the loose components, even though I shared with him that I had probably caused it from overuse and lifting over my limit of 10 pounds. I had preliminary blood work done to check for any signs of infection — all cultures came back negative. We had talked about the possibility of a two-part surgery; the first to remove the damaged components while antibiotic spacing beads would secure the arm and the second, a month or so afterward, to place the new components. Needless to say, I was less than thrilled with that idea but agreed that we needed to do what was best. On the day of surgery, he proposed a revised plan.
On the 9th, while in pre-op, Dr. Brett and I discussed the surgical plan. He would remove the components today, place the antibiotic spacers, run more tests to be sure I was infection-free, and if all went well I would have the 2nd surgery in about 5 days. All while I stayed in the hospital. I agreed that this was a much better plan and we proceeded.
The first surgery went well. He was able to remove the components and place the antibiotic beads without trouble. I did learn however, afterward, that the anesthesiologist had a difficult time with my airway. I was not surprised, my neck is severely limited and this wasn’t the first time I’d heard this. I did tell him this fact on the pre-op screen, but it was more difficult than he’d planned. So, now officially I have, “A Difficult Airway” going forward. Just great… Another thing to add to the list…
My surgery was a bit delayed, so by the time I was out of post-op and in my room it was evening. I don’t know if my nurse was new or just bad, or both, but it’s really not the sort of thing you want just after surgery. She kept referring to my “shoulder replacement”, would forget things I asked for, and never seemed to be available when I needed her.
And maybe I’m hypercritical or spoiled because for all my other surgeries at this hospital my stepmother was the well-liked and well-respected CNO (Chief Nurse Officer) for the entire hospital system – I was treated very well! She retired last year and still had many friends, but the hospital had recently gone through many changes. I still had a private room and a few of her friends came to check on me – but it didn’t feel the same this time.
Anyway — besides my first nurse being a complete ditz, the hospital didn’t have my main anti-inflammatory medication on formulary and worse yet, an anti-inflammatory wasn’t even listed on my post-op orders. If you’re not familiar – things move very slowly in a hospital. It took many hours before I had my medicine and at the next shift change — I had to go through it all over again! It wasn’t until a few shifts later that they finally got it right!!
If you have a small bladder like me – make sure you get a catheter or bring your own Depends because it takes the nurse or assistant F-O-R-E-V-E-R to come once you press the Call button– If they come at all!
Here I am, drugged up and being pumped full of giant bags of antibiotics (just in case) and medicine intravenously, I’ve got the “sucky-blowy” anti-blood-clot things on my legs, IV in my left arm, giant heavy splint on my right arm with attached drain port to a machine on the floor, and I have to pee every freaking half hour! It sounds comical now, but believe you me, it was anything but funny at the time. Eventually I got the hang of doing it all by myself — I had to — there was no other option!
The food wasn’t too bad, once they got my order right! For the first 2-3 meals I was sent up a tray that I didn’t even order. And I was starving!! Again – someone screwed up! My order had gotten put in the system twice or something screwy like that – anyway – again, it took forever to get that corrected! And speaking of food and eating – do you know not one person – nurse or assistant – offered to help at least cut up my food? I know it sounds petty, but when you have surgery involving your dominant arm/hand/elbow, wouldn’t you think they would make a note and at least offer to help the patient? Again – I managed to figure it out by myself. Of course my food was always cold and kind of gross by the end – but I managed.
About 3 days after the surgery, the splint/bandage began to really hurt and feel as if my circulation was being cut off around my wrist and hand. A PA on the floor was able to loosen the contraption for me and it felt much better for a while.
Oh, I almost forgot to mention, just so you get the full picture here – I was having full blown awful hot flashes during this time — like every hour out of the blue I would be drenched in sweat. They were able to provide me with a small portable fan that I kept on and I had turned down the room temperature really low just so I could survive. Every time someone came in they’d say the same thing, “It’s freezing in here! Are you O.K.?”
Between cat-naps, daily blood draws and Heparin shots, gallons of IV fluids, 5 a.m. doctor rounds, and a gazillion bathroom trips, I eventually fell into a bit of a routine while waiting around for my next surgery. My family and friends visited and would bring me real food and Starbucks and I even wore my own comfortable clothes from home. I caught up on a few movies on my IPad and watched the HBO docu-series Chernobyl. (Outstanding, by the way, if you haven’t seen it, please do!) All my results were coming back negative for infection, as I knew they would, and things were looking good for the second surgery.
But then things took a turn for the worse…